作者
敖 宇,邱 媛,林栋美,金雨洁,贺海琴
文章摘要
本文综述恶性血液病患者电子健康素养的内涵、测评工具、研究现状以及与自我管理能力的关系,旨在助力医务工作者理解电子健康素养与自我管理能力两者关联,借助电子信息技术制定干预措施,满足患者电子健康需求,促进其健康生活。
文章关键词
血液病;电子健康素养;自我管理能力;测评工具
参考文献
[1] Zomerdijk N,Turner JM,Hill GR.Adult-related haematopoietic stem cell donor experiences and the provision of information and psychosocial support:A systematic literature review.Eur J Cancer Care(Engl).2019 May;28(3):e12932.
[2] 陈梓潇,王鹏,张振香,等.恶性血液病病人信息需求研究进展[J].护理研究,2020,34(05):871-874.
[3] 王彩霖,侯丹.慢性病患者电子健康素养研究进展[J].中国健康教育,2022,38(12):1123-1127.
[4] Nutbeam D.The evolving concept of health literacy.Soc Sci Med.2008 Dec;67(12):2072-8.
[5] Norman CD,Skinner HAeHealth Literacy:Essential Skills for Consumer Health in a Networked World J Med Internet Res 2006;8(2):e9
[6] 厉锦巧,冯国和,张伟,等.电子健康素养理论及干预的研究进展[J].中华护理教育,2019,16(04):279-283.
[7] Paige SR,Stellefson M,Krieger JL,Anderson-Lewis C,Cheong J,Stopka C.Proposing a Transactional Model of eHealth Literacy:Concept Analysis.J Med Internet Res.2018 Oct 2;20(10):e10175.
[8] Norman CD,Skinner HA.eHEALS:The eHealth Literacy Scale.J Med Internet Res.2006 Nov 14;8(4):e27.
[9] van der Vaart R,Drossaert C Development of the Digital Health Literacy Instrument:Measuring a Broad Spectrum of Health 1.0 and Health 2.0 Skills J Med Internet Res 2017;19(1):e27
[10] Kayser L,Karnoe A,Furstrand D,Batterham R,Christensen K,Elsworth G,Osborne R.A Multidimensional Tool Based on the eHealth Literacy Framework:Development and Initial Validity Testing of the eHealth Literacy Questionnaire(eHLQ)J Med Internet Res 2018;20(2):e36
[11] Hoogland AI,Mansfield J,Lafranchise EA,Bulls HW,Johnstone PA,Jim HSL.eHealth literacy in older adults with cancer.J Geriatr Oncol.2020 Jul;11(6):1020-1022.
[12] Nejati B,Lin CC,Aaronson NK,Cheng ASK,Browall M,Lin CY,Broström A,Pakpour AH.Determinants of satisfactory patient communication and shared decision making in patients with multiple myeloma.Psychooncology.2019 Jul;28(7):1490-1497.
[13] 王璐杉,王国蓉,李松兰,等.癌症患者电子健康素养与健康相关结局关系的系统评价[J].中国健康教育,2023,39(09):802-807.
[14] CURTIN R B,MAPES D L.Health care management strategies of long-term dialysis survivors[J].Nephrol Nurs J,2001,28(4):385-392,393-394.
[15] Taylor S,Bellhouse S,Allsop M,Radford J,Yorke J.The Role of e-Health in the Delivery of Care for Patients with Hematological Cancers:A Systematic Literature Review.Telemed J E Health.2020 Sep;26(9):1093-1105.
[16] Chatterjee A,Prinz A,Gerdes M,Martinez S.Digital Interventions on Healthy Lifestyle Management:Systematic Review.J Med Internet Res.2021 Nov 17;23(11):e26931.
[17] Melhem SJ,Nabhani-Gebara S,Kayyali R.Digital Trends,Digital Literacy,and E-Health Engagement Predictors of Breast and Colorectal Cancer Survivors:A Population-Based Cross-Sectional Survey.Int J Environ Res Public Health.2023 Jan 13;20(2):1472.
Full Text:
DOI